Down Syndrome

Have a question? Ask Imua!

We here at Imua want to better connect with YOU. “Ask Imua” will open the floor to any questions regarding Imua’s services. You will be able to pose a question one of two ways: in the comment section of this blog, or on any of Imua’s social media accounts (facebook, twitter, instagam etc.) with the hashtag #askimua  and we will answer to the fullest of our ability. Confidentiality is a priority so for anonymous questions email us at msatoafaiga@imuafamilyservices.org. Names will be omitted unless otherwise noted. Ready. Set. ASK IMUA!  

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Welcome to Holland

As October and Down Syndrome Awareness Month come to an end we thought we’d leave you with this excerpt  by Emily Perl Kingsley. She describes what her experience has been raising a child with a disability. May we continue to support our keiki and help them to achieve their full potential in life! Enjoy. “I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…… When you’re going to have a…

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Raw & Real

Photo courtesy of Andrew Bayron (he and his son pictured above) Read a “Raw and Real” excerpt from a father’s journey from discovery to Down syndrome. Thank you , Andrew Byron for your candid thoughts! “From Discovering in the womb that your child will more than likely have Down Syndrome. To Doctors educating you about the multiple health and mental risks. To a down right Doctor advising terminating pregnancy. From the anguished decision to keep the child to the instant love at birth that overwhelms. To the month-long hospital stay on the mainland due to a heart issue common amongst Down…

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Maui Down Syndrome Ohana

In honor of Down Syndrome Awareness Month, we wanted to highlight a local resource for families and caregivers of keiki with Down syndrome. Imua Family Services’ Speech Language Pathologist, Beth Jones MS, CCC-SLP facilitates a monthly group which often meets in different settings. Beth explains “Our get-togethers are typically very casual and provide the children an opportunity to socialize and the parents to get to know one another and share information.” If you are a family on Maui who has a child with Down syndrome and are interested in joining the Maui Down Syndrome Ohana, please feel free to contact…

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Myths & Truths

We hope you find National Down  Syndrome Society’s list of Myth & Truths as helpful as we did! Let’s help to set these myth’s straight!  “MYTH: Down syndrome is a rare disorder TRUTH: Down syndrome is the most commonly occurring genetic condition. One in every 691 babies in the United States is born with Down syndrome, or approximately 6,000 births per year. Today, there are more than 400,000 people with Down syndrome living in the United States.   MYTH: People with Down syndrome have a short life span.  TRUTH: Life expectancy for individuals with Down syndrome has increased dramatically in recent years,…

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What is Down Syndrome?

According to the National Down Syndrome Society (ndss.org), “Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome. A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm – although each person with Down syndrome is a unique individual and may possess these characteristics to different degrees, or not at all”.       …

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